Knowledge · Glossary
The language of personal data
154 names for one idea: that people can hold, control and use their own data. From the right to privacy (1890) to terms first used in 2026, each with the sources that used it.
The terms begin with Appendix A of Dr. Becker’s doctoral research (Becker, 2024), with sources added since. Each year marks an early use found in the sources, not proof of who coined the term.
Definitions are written from the cited sources, in plain English, and are reviewed as the field moves. Missing a term, or spotted something to correct? Suggest it, with a source if you have one.
Right to privacy
A legal principle, set out by Warren and Brandeis in 1890, that people have a right to protect their private lives and personal information from public exposure.
Sources: Warren and Brandeis (1890)
References (1)
- Warren, S. D., & Brandeis, L. (1890). The right to privacy. Harvard Law Review, 4(5), 193–220. https://groups.csail.mit.edu/mac/classes/6.805/articles/privacy/Privacy_brand_warr2.html In References
Right to be let alone
Justice Brandeis's phrase, in his 1928 Olmstead dissent, for the right to be free from government intrusion, including surveillance of private communications.
Sources: Olmstead v. U.S., 277 U.S. 438 (1928)
MEMEX Machine
Vannevar Bush's imagined desk-sized device for storing, linking and recalling a person's books, records and communications, an early vision of personal information management.
Sources: Bush (1945, 1959/1991, 1967/1991)
References (1)
- Bush, V. (1945). As we may think. The Atlantic Monthly, 176(1), 101-108. http://www.theatlantic.com/magazine/archive/1945/07/as-we-may-think/303881/ In References
Privacy
The ability of individuals to choose who, what, when, where, for what purpose and for how long others have access to them and their information.
Sources: Westin (1967)
References (1)
- Westin, A. F. (1967). Privacy and freedom. Atheneum. In References
Ombudsman
An independent official who takes up individuals' complaints about how organizations collect and use records about them, as discussed in the 1973 US HEW records report.
Sources: Ware (1973)
References (1)
- Ware, W. (1973, June 30). Records, computers and the rights of citizens [Transmittal Letter to In References
Information almost wants to be free, but it also wants to be expensive
Stewart Brand's 1984 observation that information is cheap to copy and share, yet the right information is highly valuable, so the two pressures pull against each other.
Sources: Brand (1984), Getty Images (1984), Gans (2015)
References (2)
- Brand, S. (Ed.). (1984). Keep designing. The Whole Earth Review, 44–55. https://www.tech- insider.org/personal-computers/research/acrobat/8505-a.pdf In References
- Gans, J. (2015, October 25). “Information wants to be free”: The history of that quote. Digitopoly. https://digitopoly.org/2015/10/25/information-wants-to-be-free-the-history- of-that-quote In References
Zero-Knowledge Proof
A way to prove that a statement is true, such as "I am over 18", without revealing anything else, such as your birthdate. Introduced by Goldwasser, Micali and Rackoff in 1985; today behind selective disclosure in verifiable credentials.
Sources: Goldwasser et al. (1985)
References (1)
- Goldwasser, S., Micali, S., & Rackoff, C. (1985). The knowledge complexity of interactive proof-systems. In Proceedings of the Seventeenth Annual ACM Symposium on Theory of Computing (pp. 291–304). Association for Computing Machinery. https://doi.org/10.1145/22145.22178 In References
Trust, but Verify
An old Russian proverb (doveryai, no proveryai): extend trust, then check it. Its origin is unknown; the idea is written down by Lenin in 1914 ("Put no faith in words; subject everything to the closest scrutiny"). Ronald Reagan, taught it by the historian Suzanne Massie, popularized it in English during nuclear arms talks, quoting it to Mikhail Gorbachev at the signing of the INF Treaty in 1987.
Sources: Lenin (1914/1972); Reagan (1987); Massie (2013)
References (3)
- Lenin, V. I. (1972). Adventurism (B. Isaacs & J. Fineberg, Trans.). In Collected works (Vol. 20, pp. 356–359). Progress Publishers. https://www.marxists.org/archive/lenin/works/1914/jun/09.htm (Original work published 1914) In References
- Reagan, R. (1987, December 8). Remarks on signing the Intermediate-Range Nuclear Forces Treaty [Speech transcript]. Ronald Reagan Presidential Library & Museum. https://www.reaganlibrary.gov/research/speeches/120887c In References
- Massie, S. (2013). Trust but verify: Reagan, Russia and me. Maine Authors Publishing. In References
Ubiquitous computing (Ubicomp) tools
Computing built into everyday objects and surroundings, including sensors and devices that collect personal data people can use to reflect on their own behaviour.
Sources: Weiser (1991), Li et al. (2011)
References (2)
- Li, I., Dey, A. K., & Forlizzi, J. (2011). Understanding my data, myself: Supporting self- reflection with ubicomp technologies. Proceedings of the 13th International Conference on Ubiquitous Computing, 405–414. https://doi.org/10.1145/2030112.2030166 In References
- Weiser, Mark (1991). The computer for the 21st Century. ACM SIGMOBILE Mobile Computing and Communications Review 3(3), 3–11. 2014. https://doi.org/10.1145/329124.329126 In References
Infomediaries
Intermediaries that hold consumers' personal information and act as their agents, negotiating with companies over how that information is used and what consumers receive for it.
Sources: Hagel & Rayport (1997), Hagel & Singer (1999)
References (2)
- Hagel, J., & Rayport, J. (1997, January–February). The coming battle for customer information. Harvard Business Review. https://hbr.org/1997/01/the-coming-battle-for-customer- information In References
- Hagel, J., & Singer, M. (1999, March-April). Unbundling the corporation. Harvard Business Review. https://hbr.org/1999/03/unbundling-the-corporation In References
National Information Exchange Marketplace
Laudon's proposed market where individuals hold rights to their personal information in accounts and can sell or license its use to organizations through regulated intermediaries.
Sources: Laudon (1997)
References (1)
- Laudon, K. (1997, January). Extensions to the theory of markets and privacy: Mechanics of pricing information [Working paper]. NYU Working Paper No. 2451/14166, Available at SSRN: https://ssrn.com/abstract=1283008 In References
DigitalMe
Novell's 1999 online identity service that let people store personal details in profiles and choose which details to share with websites and contacts.
Sources: Novell (1999)
References (1)
- Novell. (1999, October 5). Novell debuts new digitalme ‘in-the-net’ service [Press release]. https://www.novell.com/news/press/archive/1999/10/pr99123.html In References
meBusiness
Novell's 1999 term for businesses building relationships through customer-controlled identity profiles, such as those held in its digitalme service, rather than company-held records.
Sources: Novell (1999)
References (1)
- Novell. (1999, October 5). Novell debuts new digitalme ‘in-the-net’ service [Press release]. https://www.novell.com/news/press/archive/1999/10/pr99123.html In References
Personal Data Store
A tool or service where a person gathers, stores and manages their own personal data and decides which organizations may access or use it.
Sources: Alessi (2019), Crabtree et al. (2016, 2018), Dataswyft (2022), Eclipse Foundation (2008), Fallatah et al. (2023), Montjoye et al. (2014), Mun et al. (2010), Mydex Community Interest Company (2010), Owano (2013), Reed (2010a), Royal Society (2019), Trevithick (2010a), Vescovi et al. (2014), World Economic Forum (2013)
References (13)
- Alessi, M., Camillò, A., Giangreco, E., Matera, M., Pino, S., & Storelli, D. (2019). A decentralized personal data store based on Ethereum: Towards GDPR compliance. Journal of Communications Software and Systems, 15. https://doi.org/10.24138/jcomss.v15i2.696 In References
- Crabtree, A., Lodge, T., Colley, J., Greenhalgh, C., Mortier, R., & Haddadi, H. (2016). Enabling the new economic actor: data protection, the digital economy, and the databox. Personal and Ubiquitous Computing, 20(6), 947–957. https://doi.org/10.1007/s00779-016-0939-3 In References
- Crabtree, A., Lodge, T., Colley, J., Greenhalgh, C., Glover, K., Haddadi, H., Amar, Y., Mortier, R., Li, Q., Moore, J., Wang, L., Yadav, P., Zhao, J., Brown, A., Urquhart, L., & McAuley, D. (2018). Building accountability into the Internet of Things: The IoT databox model. Journal of Reliable Intelligent Environments, 4(1), 39–55. https://doi.org/10.1007/s40860-018-0054-5 In References
- Dataswyft. (2022, March 14). Create personal data accounts for your users in less than 5 minutes [Video]. YouTube. https://www.youtube.com/watch?v=zniJ1PrcTyc In References
- Eclipse Foundation. (2008, April 15). Eclipse Higgins. https://projects.eclipse.org/projects/technology.higgins In References
- Fallatah, K. U., Barhamgi, M., & Perera, C. (2023). Personal data stores (PDS): A review. Sensors, 23(3), 1477. https://doi.org/10.3390/s23031477 In References
- Montjoye, Y.-A. de, Shmueli, E., Wang, S. S., & Pentland, A. S. (2014). openPDS: Protecting the privacy of metadata through SafeAnswers. PLOS ONE, 9(7), Article e98790. https://doi.org/10.1371/journal.pone.0098790 In References
- Mun, M., Hao, S., Mishra, N., Shilton, K., Burke, J., Estrin, D., Hansen, M., & Govindan, R. (2010). Personal data vaults: A locus of control for personal data streams. Co-NEXT ’10: Proceedings of the 6th International Conference, 1–12, Article 17. https://dl.acm.org/doi/10.1145/1921168.1921191 In References
- Mydex Community Interest Company. (2010). The case for personal information empowerment: The rise of the personal data store. https://mydex.org/resources/papers/The_case_for_personal_information_empowerment/t he_case_for_personal_information_empowerment_- _the_rise_of_the_personal_data_store_- _a_mydex_white_paper_september_2010_final_web.pdf In References
- Owano, N. (2013, October 7). openPDS software focuses on control of personal data. Phys.org. http://phys.org/news/2013-10-openpds-software-focuses-personal.html In References
- Reed, D. (2010a). Out with “personal data store”, in with “personal data service.” Equals Drummond. https://equalsdrummond.name/2010/10/03/out-with-personal-data-store-in- with-personal-data-service In References
- Trevithick, P. (2010a). Higgins active clients and personal data stores v2. Slideshare. https://www.slideshare.net/ptrevithick/higgins-active-clients-and-personal-data-stores-v2 In References
- Vescovi, M., Lepri, B., Perentis, C., Moiso, C., & Chiara, L. (2014). My data store: Toward user awareness and control on personal data. UbiComp '14 Adjunct, 179–182. http://ubicomp.org/ubicomp2014/proceedings/ubicomp_adjunct/posters/p179- vescovi.pdf In References
Data governance
The policies, roles and processes an organization uses to manage data as an asset, including its quality, security, use and accountability.
Sources: Ladley (2019)
References (1)
- Ladley, J. (2019). Data governance: How to design, deploy, and sustain an effective data governance program (2nd ed.). Academic Press. In References
Semantic Web
A vision for the web in which data carries machine-readable meaning, so software can find, combine and reason over information across sites.
Sources: Berners-Lee et al. (2000)
References (1)
- Berners-Lee, T., Connolly, D., Stein, L. A., & Swick, R. (2000, August 15). The semantic web. World Wide Web Consortium. https://www.w3.org/2000/Talks/0906-xmlweb- tbl/text.htm In References
Right Side Up
Alan Mitchell's argument that marketing should be reorganized around consumers, who act through their own agents and information rather than being targeted by companies.
Sources: Mitchell (2001)
References (1)
- Mitchell, A. (2001). Right Side Up: Building brands in the age of the organized consumer. HarperCollins. In References
Data Vault
Linstedt's data-warehouse modelling method for storing historical organizational data; the name differs from personal data vaults, which hold an individual's own data.
Sources: Linstedt (2002)
References (1)
- Linstedt, D. (2002, July 1). Data vault series 1 – Data vault overview. The Data Administration Newsletter. https://tdan.com/data-vault-series-1-data-vault-overview/5054 In References
Customer Managed Interactions
An approach in which customers use their own data and software to start and control their dealings with firms, rather than firms managing the relationship.
Sources: Watson (2003, 2004), Watson et al. (2005), Parasuraman (2006)
References (4)
- Parasuraman, A. (2006). Modeling opportunities in service recovery and customer-managed interactions. Marketing Science, 25(6), 590–593. https://www.jstor.org/stable/40057195 In References
- Watson, R. (2003). Customer-managed interactions. https://web.archive.org/web/20050515123935/http://www.terry.uga.edu/~rwatson/mist7700/cmi. pdf In References
- Watson, R. (2004). I am my own database. Harvard Business Review, 18–19+ 146. https://store.hbr.org/product/i-am-my-own-database/F0411A In References
- Watson, R., Piccoli, G., Brohman, K.M., Parasuraman, A. (2005). Customer-managed interactions: A new paradigm for firm customer relationships. MIS Quarterly Executive 4(2), 319–327. https://www.researchgate.net/profile/Richard-Watson- 16/publication/220500602_Customer-Managed_Interactions_A_New_Paradigm_for_Firm- Customer_Relationships/links/565ecf5108aeafc2aac91897/Customer-Managed- Interactions-A-New-Paradigm-for-Firm-Customer-Relatio In References
Personal Data Lockbox
A descriptive name for a secure store of personal data that the individual controls, deciding who may add to it, see it or use it.
Sources: Hayes-Roth (2004), Yeung & Sandström (2004); related: Siegel (2010), Mun et al. (2010), Mydex CIC (2010); later use: Becker (2024)
References (6)
- Yeung, P., & Sandström, H. (2004). Method for control of personal data (International Publication No. WO 2004/072885 A1). World Intellectual Property Organization. https://patents.google.com/patent/WO2004072885A1/en In References
- Hayes-Roth, F. (2004). Personal portal and secure information exchange (U.S. Patent Application Publication No. US 2004/0267707 A1). U.S. Patent and Trademark Office. https://patents.google.com/patent/US20040267707A1/en In References
- Siegel, D. (2010). Pull: The power of the semantic web to transform your business. Portfolio. In References
- Mun, M., Hao, S., Mishra, N., Shilton, K., Burke, J., Estrin, D., Hansen, M., & Govindan, R. (2010). Personal data vaults: A locus of control for personal data streams. In Proceedings of the 6th International Conference on emerging Networking EXperiments and Technologies (CoNEXT '10). ACM. https://doi.org/10.1145/1921168.1921191 In References
- Mydex CIC. (2010). The case for personal information empowerment: The rise of the personal data store [White paper]. https://mydex.org/resources/papers/The_case_for_personal_information_empowerment/the_case_for_personal_information_empowerment_-_the_rise_of_the_personal_data_store_-_a_mydex_white_paper_september_2010_final_web.pdf In References
- Becker, M. J. (2024). Predicting personal information management systems use [Doctoral dissertation, Golden Gate University]. SSRN. https://papers.ssrn.com/sol3/papers.cfm?abstract_id=4879650 In References
Privacy Preserving Reputation Management
Reputation systems that let participants rate and trust one another without revealing their identities or the personal details behind their ratings.
Sources: Kinateder & Pearson (2003), Ma et al. (2019)
References (2)
- Kinateder, M., & Pearson, S. (2003). A privacy-enhanced peer-to-peer reputation system. In K. In References
- Ma, L., Liu, X., Pei, Q., & Xiang, Y. (2019). Privacy-preserving reputation management for edge computing enhanced mobile crowdsensing. IEEE Transactions on Services Computing, 12(5), 786–799. https://doi.org/10.1109/TSC.2018.2825986 In References
Stuff I've seen
A Microsoft Research system that indexed the email, files and web pages a person had already seen so they could easily find and reuse them.
Sources: Dumais et al. (2003)
References (1)
- Dumais, S., Cutrell, E., Cadiz, J., Jancke, G., Sarin, R., & Robbins, D. C. (2003). Stuff I’ve seen: A system for personal information retrieval and re-use. Proceedings of the 26th Annual International ACM SIGIR Conference on Research and Development in Information Retrieval, 72–79. https://doi.org/10.1145/860435.860451 In References
Personal Cloud
A personal data management system, hosted online or on a home device, where an individual keeps their data and runs services over it under their control.
Sources: Anciaux et al. (2019)
References (1)
- Anciaux, N., Bonnet, P., Bouganim, L., Nguyen, B., Pucheral, P., Sandu Popa, I., & Scerri, G. (2019). Personal data management systems: The security and functionality standpoint. Information Systems, 80, 13–35. https://doi.org/10.1016/j.is.2018.09.002 In References
OntoPIM
A research approach to personal information management that uses a personal ontology, a model of a person's concepts, to organize and retrieve their information.
Sources: Katifori et al. (2005)
References (1)
- Katifori, V., Poggi, A., Scannapieco, M., Catarci, T., & Ioannidis, Y. (2005). OntoPIM: How to rely on a personal ontology for personal information management. Proceedings of the 2005 international conference on semantic desktop workshop: Next generation information management D collaboration infrastructure, 175, 258–262. https://ceur- ws.org/Vol-175/25_poggi_ontopim_poster.pdf In References
Personal Knowledge Bank
Mitchell and Henderson's idea of a store of personal information that individuals hold and use to manage their own dealings with organizations.
Sources: Mitchell & Henderson (2005)
References (1)
- Mitchell, A., & Henderson, I. (2005). Opinion piece: The next big thing? Journal of Direct, Data and Digital Marketing Practice, 7(1), 8–17. https://doi.org/10.1057/palgrave.dddmp.4340501 In References
Semex System
A research platform that integrated a person's email, documents and contacts into linked objects and associations so they could browse and search them together.
Sources: Dong & Halevy (2005)
References (1)
- Dong, X., & Halevy, A. (2005). A platform for personal information management and integration. Conference on Innovative Data Systems Research. https://www.semanticscholar.org/paper/A-Platform-for-Personal-Information- Management-and-Dong-Halevy/65a563c2db5b647a6198ef0cebb961e4dcc51ff9 In References
The Laws of Identity
Kim Cameron's seven principles for digital identity systems, including user control and consent, minimal disclosure, and justifiable parties.
Sources: Cameron (2005)
References (1)
- Cameron, K. (2005, May 11). The laws of identity. Identity Blog. http://www.identityblog.com/stories/2005/05/13/TheLawsOfIdentity.pdf In References
Data Commons
Data or knowledge treated as a shared resource, governed by a community under agreed rules rather than owned privately or by the state.
Sources: Hess & Ostrom (2006), Rosnay & Stalder (2020)
References (1)
- Hess, C., & Ostrom, E. (Eds.). (2006). Understanding knowledge as a commons: From theory to practice. MIT Press. https://doi.org/10.7551/mitpress/6980.001.0001 In References
iMeMex
A research platform for personal dataspace management that brought together a person's files, email and other data sources under one queryable view.
Sources: Dittrich (2006)
References (1)
- Dittrich, J.-P. (2006). iMeMex: A platform for personal dataspace management [Position paper]. Proceedings of the 2nd NSF [Swiss National Science Foundation] sponsored workshop on PIM, ACM SIGIR 2006. https://bigdata.uni-saarland.de/publications/Dit06.pdf In References
Lifebits
MyLifeBits, a Microsoft Research project that digitally recorded and stored the documents, media and communications of Gordon Bell's life in one personal database.
Sources: Gemmell et al. (2006)
References (1)
- Gemmell, J., Bell, G., & Lueder, R. (2006). MyLifeBits: A personal database for everything. Communications of the Association for Computing Machinery, 49(1), 89–95. https://doi.org/10.1145/1107458.1107460 Getty Images (1984, November 1). Stewart Brand states information wants to be [Video]. https://www.gettyimages.in/detail/video/at-the-first-hackers-conference-in-1984-steve- wozniak-and-news-footage/146496695 In References
Personal Database
A single database that holds all of a person's digital records, such as documents, photos, messages and media, for storage, search and recall.
Sources: Gemmell et al. (2006)
References (1)
- Gemmell, J., Bell, G., & Lueder, R. (2006). MyLifeBits: A personal database for everything. Communications of the Association for Computing Machinery, 49(1), 89–95. https://doi.org/10.1145/1107458.1107460 Getty Images (1984, November 1). Stewart Brand states information wants to be [Video]. https://www.gettyimages.in/detail/video/at-the-first-hackers-conference-in-1984-steve- wozniak-and-news-footage/146496695 In References
Vendor Relationship Management Tool
Software that helps individuals manage their relationships with vendors on their own terms; the counterpart to companies' customer relationship management.
Sources: Vizard & Searls (2006), Mitchell et al. (2008)
References (2)
- Mitchell, A., Henderson, I., & Searls, D. (2008). Reinventing direct marketing — With VRM inside. Journal of Direct, Data and Digital Marketing Practice, 10(1), 3–15. https://doi.org/10.1057/dddmp.2008.24 In References
- Vizard, M., & Searls, D. (2006, September 1). VRM gang part I. [Podcast episode]. Project VRM. https://cyber.harvard.edu/projectvrm/VRM_discussion_in_podcasts (follow-on URLs no longer active) In References
Web 3.0
In Markoff's 2006 usage, a next stage of the web in which software understands the meaning of online information, closely tied to the semantic web.
Sources: Markoff (2006)
References (1)
- Markoff, J. (2006, November 12). Entrepreneurs see a web guided by common sense. The New York Times. https://www.nytimes.com/2006/11/12/business/12web.html In References
Healthvault
Microsoft HealthVault, a personal health record platform launched in 2007 where people could store their health information and share it with providers and apps.
Sources: Kelly (2007b)
References (1)
- Kelly, K. (2007b, October 8). Healthvault, Phase 1. Quantified Self. https://web.archive.org/web/20121101074750/http://quantifiedself.com/2007/10/healthva ult-phase-1 In References
Information Cards
Visual digital identity cards, used in Microsoft's CardSpace identity selector, that let people choose which identity and claims to present to a website.
Sources: Cameron (2007)
References (1)
- Cameron, K. (2007, February 17). HelloWorld information cards. Kim Cameron’s Identity Weblog. https://www.identityblog.com/?p=684 In References
Linked Data
Tim Berners-Lee's set of practices for publishing structured data on the web with URIs and standard formats, so data from different sources can be connected.
Sources: Berners-Lee (2009)
References (1)
- Berners-Lee, T. (2009, June 18). Linked data. Worldwide Web Consortium. https://www.w3.org/DesignIssues/LinkedData.html In References
Open Data
Data published so anyone can freely access, reuse and share it, such as the structured Wikipedia data in DBpedia.
Sources: Auer et al. (2007)
References (1)
- Auer, S., Bizer, C., Kobilarov, G., Lehmann, J., Cyganiak, R., Ives, Z. (2007). DBpedia: A nucleus for a web of open data. In: Aberer, K., et al. The Semantic Web. ISWC ASWC 2007 2007. Lecture Notes in Computer Science, vol 4825. Springer, Berlin, Heidelberg. https://doi.org/10.1007/978-3-540-76298-0_52 In References
Quantified Self
A movement of people who track data about their own bodies, habits and activities to gain self-knowledge.
Sources: Kelly (2007a), Wolf (2010)
References (2)
- Kelly, K. (2007a, October 5). What is the quantified self? Quantified Self. https://web.archive.org/web/20130125202220/http://quantifiedself.com/2007/10/what-is- the-quantifiable-self In References
- Wolf, G. (2010). The quantified self [Video]. TED Conference. https://www.ted.com/talks/gary_wolf_the_quantified_self?language=en&subtitle=en In References
Distributed personal web-service
Personal data scattered across many web services; Geambasu et al. built a system to organize and share it across those services from one place.
Sources: Geambasu et al. (2008)
References (1)
- Geambasu, R., Cheung, C., Moshchuk, A., Gribble, S. D., & Levy, H. M. (2008). Organizing and sharing distributed personal web-service data. Proceedings of the 17th International Conference on World Wide Web, 755–764. https://doi.org/10.1145/1367497.1367599 In References
Polis
A research prototype personal data management system in which individuals keep their own personal data and control what is disclosed to service providers.
Sources: Efraimidis et al. (2008)
References (1)
- Efraimidis, P. S., Drosatos, G., Nalbadis, F., & Tasidou, A. (2008). Towards privacy in personal data management. 2008 Panhellenic Conference on Informatics, IEEE, 3–7. https://doi.org/10.1109/PCI.2008.11 In References
Privacy by Design
Ann Cavoukian's approach of building privacy into systems and practices from the start, using seven principles such as privacy as the default setting.
Sources: Cavoukian (2008, 2009)
References (2)
- Cavoukian, A. (2008, December 18). Privacy in the clouds. Identity in the Information Society 1, 89–108. http://doi.org/10.1007/s12394-008-0005-z In References
- Cavoukian, A. (2009, August). Privacy by design, The 7 foundational principles. Office of the Privacy Commissioner of Canada. https://privacy.ucsc.edu/resources/privacy-by-design-- -foundational-principles.pdf In References
Lifelogging
Continuously recording details of one's own life, such as images, location and activity, in digital form for later memory, reflection or use.
Sources: O’Hara et al, (2009), Gurrin et. al., (2014)
References (2)
- Gurrin, C., Smeaton, A., & Doherty, A. (2014). LifeLogging: Personal big data. Foundations and Trends in Information Retrieval, 8(1). https://doi.org/10.1561/1500000033 In References
- O’Hara, K., Tuffield, M. M., & Shadbolt, N. (2009). Lifelogging: Privacy and empowerment with memories for life. Identity in the Information Society, 1(1), 155–172. https://doi.org/10.1007/s12394-009-0008-4 In References
Personal Data Stream
The continuous flow of data, such as location and activity, collected about a person by mobile sensing, designed so the person can take part in decisions about sharing.
Sources: Shilton et al., (2009)
References (1)
- Shilton, K., Burke, J.A., Estrin, D., Hansen, M., Kang, J., & Mun, M. (2009) Designing the personal data stream: Enabling participatory privacy in mobile personal sensing. Proceedings of the 37th Research Conference on Communications, Information and Internet Policy (TPRC), 25–27. https://scholarworks.umass.edu/cgi/viewcontent.cgi?article=1356&context=esence In References
The new oil
A metaphor, used by EU Commissioner Kuneva in 2009 and later The Economist, describing personal data as a valuable resource that fuels the digital economy.
Sources: Kuneva (2009), The Economist (2017b)
References (2)
- Kuneva, M. (2009, March 31). Meglena Kuneva – European Consumer Commissioner – Keynote speech – Roundtable on online data collection, targeting, and profiling. [Speech transcript]. European Commission. https://ec.europa.eu/commission/presscorner/detail/en/SPEECH_09_156 In References
- The Economist. (2017b). The world’s most valuable resource is no longer oil, but data. https://www.economist.com/leaders/2017/05/06/the-worlds-most-valuable-resource-is- no-longer-oil-but-data In References
Virtual Individual Server
A virtual machine in the cloud, dedicated to one person, that holds data from their mobile devices and shares it with others as a privacy-preserving proxy.
Sources: Cáceres et al. (2009)
References (1)
- Cáceres, R., Cox, L., Lim, H., Shakimov, A., & Varshavsky, A. (2009). Virtual individual servers as privacy-preserving proxies for mobile devices. Proceedings of the 1st ACM In References
Customer Managed Profiling System
An arrangement in which consumers create and manage their own profiles and decide what to share with sellers, as a way of protecting privacy in buying.
Sources: Reppel & Szmigin (2010)
References (1)
- Reppel, A., & Szmigin, I. (2010). Consumer-managed profiling: A contemporary interpretation of privacy in buyer-seller interactions. Journal of Marketing Management, 26(3-4), 321– 342. https://doi.org/10.1080/02672570903566383 In References
Personal Cloud Butler
In the PrPl research project, a personal service that stores and indexes a person's data across devices and services and controls how it is shared.
Sources: Seong et al. (2010)
References (1)
- Seong, S.-W., Seo, J., Nasielski, M., Sengupta, D., Hangal, S., Keat, S., Ruven, T., Ben, C., Monica, D., & Lam, S. (2010). PrPl: A decentralized social networking infrastructure: Social networks and beyond (MCS). MCS ’10: Proceedings of the 1st ACM Workshop on Mobile Cloud Computing & Services, 1–8, Article 8. https://doi.org/10.1145/1810931.1810939 In References
Personal Container
A research concept for a store of a person's collected digital data, such as messages and sensor readings, kept and processed under that person's control.
Sources: Mortier et al. (2010)
References (1)
- Mortier, R., Greenhalgh, C., McAuley, D., Spence, A., Madhavapeddy, A., Crowcroft, J., & Hand, S. (2010, October 1). The personal container, or your life in bits. Digital Futures, 10, 11–12. https://mort.io/publications/pdf/de10-perscon.pdf In References
Personal Data Ecosystem
The network of people, organizations, tools and rules through which individuals can manage and share their own personal data; the name of a 2010 industry consortium.
Sources: Landsman et al. (2010)
References (1)
- Landsman, D., Young, K., Reed, D., & Hodder, M. (2010). Personal data ecosystem collaborative consortium: Catalyzing systems that work for all [Unpublished manuscript]. Personal Data Ecosystem Consortium. In References
Personal Data Server
Server software or hosting that runs a person's personal data store and related services, holding their data and handling requests to access it.
Sources: Reed (2010b)
References (1)
- Reed, D. (2010b). Revision: “Personal data service” and “personal data store” go together. Equals Drummond. https://equalsdrummond.name/2010/10/06/revision-personal-data- service-and-personal-data-store In References
Personal Data Service
A service, often paired with a personal data store, that acts for a person to manage, share and exchange their personal data with others.
Sources: Reed (2010a, 2010b), Trevithick (2010a)
References (3)
- Reed, D. (2010a). Out with “personal data store”, in with “personal data service.” Equals Drummond. https://equalsdrummond.name/2010/10/03/out-with-personal-data-store-in- with-personal-data-service In References
- Reed, D. (2010b). Revision: “Personal data service” and “personal data store” go together. Equals Drummond. https://equalsdrummond.name/2010/10/06/revision-personal-data- service-and-personal-data-store In References
- Trevithick, P. (2010a). Higgins active clients and personal data stores v2. Slideshare. https://www.slideshare.net/ptrevithick/higgins-active-clients-and-personal-data-stores-v2 In References
Personal Data Vault
A secure store under a person's control that holds their personal data, such as sensor or location data, and lets them choose what to share and with whom.
Sources: Hoefmans et al. (2022), Mun et al. (2010), Mun et al. (2014)
References (3)
- Hoefmans, M.-J., Hansen-Staszyński, O., & Hageman, B. (2022). The what & the how of personal data management [Position paper]. Schluss. https://schluss.org/wp- content/uploads/2022/12/What-does-it-mean-users-in-full-control-over-their-data- CONCEPT.pdf In References
- Mun, M., Hao, S., Mishra, N., Shilton, K., Burke, J., Estrin, D., Hansen, M., & Govindan, R. (2010). Personal data vaults: A locus of control for personal data streams. Co-NEXT ’10: Proceedings of the 6th International Conference, 1–12, Article 17. https://dl.acm.org/doi/10.1145/1921168.1921191 In References
- Mun, M. Y., Kim, D. H., Shilton, K., Estrin, D., Hansen, M., & Govindan, R. (2014). PDVLoc: A personal data vault for controlled location data sharing. ACM Transactions on Sensor Networks, 10(4), 1–29, Article 58. https://dl.acm.org/doi/10.1145/2523820 In References
Privacy-Preserving Technologies
Technical methods, such as anonymisation, aggregation and answering queries without releasing raw data, that let personal data be used while limiting exposure of the individual.
Sources: Moiso et al. (2012), Montjoye et al. (2014), Mun et al. (2010), Perentis et al. (2017)
References (4)
- Moiso, C., Antonelli, F., & Vescovi, M. (2012). How do I manage my personal data? A telco perspective. Proceedings of the International Conference on Data Technologies and Applications DATA,1, 123–128. https://doi.org/10.5220/0003996301230128 In References
- Montjoye, Y.-A. de, Shmueli, E., Wang, S. S., & Pentland, A. S. (2014). openPDS: Protecting the privacy of metadata through SafeAnswers. PLOS ONE, 9(7), Article e98790. https://doi.org/10.1371/journal.pone.0098790 In References
- Mun, M., Hao, S., Mishra, N., Shilton, K., Burke, J., Estrin, D., Hansen, M., & Govindan, R. (2010). Personal data vaults: A locus of control for personal data streams. Co-NEXT ’10: Proceedings of the 6th International Conference, 1–12, Article 17. https://dl.acm.org/doi/10.1145/1921168.1921191 In References
- Perentis, C., Vescovi, M., Leonardi, C., Moiso, C., Musolesi, M., Pianesi, F., & Lepri, B. (2017). Anonymous or not? Understanding the factors affecting personal mobile data disclosure. https://doi.org/10.48550/arXiv.1701.08308 In References
Zero Trust
A security model, set out by Forrester analyst John Kindervag, that trusts no user, device or network by default and checks every access request.
Sources: Kindervag (2010)
References (1)
- Kindervag, J. (Producer). (2010). No more chewy centers: Introducing the zero trust model of information security [Webinar]. Forrester. https://www.forrester.com/webinar/No%2BMore%2BChewy%2BCenters%2BThe%2BZ eroTrust%2BModel%2BOf%2BInformation%2BSecurity/WEB6741 In References
midata
A UK government programme launched in 2011 that encouraged companies to give consumers their own transaction and usage data back in a portable, electronic form.
Sources: Department for Business, Innovation and Skills & Davey (2011)
References (1)
- Department for Business, Innovation and Skills, & Davey, E. (2011, November 3). The midata vision of consumer empowerment [Press release]. GOV.UK. https://www.gov.uk/government/news/the-midata-vision-of-consumer-empowerment In References
Personal Applications
Software that runs on a person's own data store and works on their behalf, as described in Project Danube's vision for personal data and identity.
Sources: Project Danube (2011)
References (1)
- Project Danube. (2011, July 27). Three visions. https://web.archive.org/web/20110727190446/http://projectdanube.org/three-visions In References
Personal Data Analytics
Analysis of personal data done by or for the individual, so they can learn from it and decide how it is used.
Sources: Personal Data Ecosystem Consortium (n.d.)
References (1)
- Personal Data Ecosystem Consortium. (n.d.). Introduction to the Personal Data Ecosystem. http://pde.cc/introduction-to-the-personal-data-ecosystem/ In References
Personal Data Bank
A service, like a bank for money, that holds an individual's personal data for them and releases it to others only on their instruction.
Sources: Personal Data Ecosystem Consortium (n.d.)
References (1)
- Personal Data Ecosystem Consortium. (n.d.). Introduction to the Personal Data Ecosystem. http://pde.cc/introduction-to-the-personal-data-ecosystem/ In References
Personal Data Locker
A secure online store where a person keeps their personal data and documents and chooses which parties may access them.
Sources: Personal Data Ecosystem Consortium (n.d.)
References (1)
- Personal Data Ecosystem Consortium. (n.d.). Introduction to the Personal Data Ecosystem. http://pde.cc/introduction-to-the-personal-data-ecosystem/ In References
Personal Data: A New Asset Class
A 2011 World Economic Forum report that described personal data as a new economic asset and called for an ecosystem that is balanced, trusted and centred on the user.
Sources: World Economic Forum (2011)
References (1)
- World Economic Forum. (2011). Personal data: The emergence of a new asset class. http://www.weforum.org/reports/personal-data-emergence-new-asset-class In References
Personal informatics
Systems that help people collect, reflect on and act on information about themselves, such as activity, health or spending, to gain self-knowledge.
Sources: Li et al. (2021)
Intention Economy
Doc Searls's idea of a market in which customers state what they want and on what terms, and vendors respond, rather than vendors tracking customers.
Sources: Searls (2012)
References (1)
- Searls, D. (2012). The intention economy: When customers take charge. Harvard Business Review Press. In References
Life management platform
KuppingerCole's term for a platform where individuals securely store their personal data and share it under their own control with organisations they choose.
Sources: Kuppinger (2012), Burton (2013)
References (2)
- Burton, C. (2013, June 5). Life management platforms evolution [Keynote address]. European Identity & Cloud Conference 2013. Munich, Germany. KuppingerCole. https://www.kuppingercole.com/watch/eic13_keynote_burton In References
- Kuppinger, M. (2012, March). Life management platforms: Control and privacy for personal data [Advisory note]. KuppingerCole. https://decentralized- id.com/_posts/history/70608PersonalDataLifeManagementPlatforms.pdf In References
Self-Sovereign Identity
An approach to digital identity in which the individual holds and controls their own identifiers and credentials and does not depend on any single issuer or platform.
Sources: Loffreto (2012, 2016)
References (2)
- Loffreto, D. (2012, February 15). What is “sovereign source authority”? The Moxy Tongue. https://www.moxytongue.com/2012/02/what-is-sovereign-source-authority.html In References
- Loffreto, D. (2016, May 24). ID2020: United Nations exploring self-sovereign ID. LinkedIn. https://www.linkedin.com/pulse/id2020-united-nations-exploring-self-sovereign-id- devon-mt-loffreto In References
Unbiased Private Data
Aperjis and Huberman's proposed market that pays individuals for their private data according to their privacy attitudes, so samples bought are not skewed.
Sources: Aperjis & Huberman (2012)
References (1)
- Aperjis, C., Huberman, B. (2012, April 26). A market for unbiased private data: Paying individuals according to their privacy attitudes. Available at SSRN: https://ssrn.com/abstract=2046861 In References
A Bite of Me
A 2013 Kickstarter project in which Federico Zannier sold a month of his own browsing, location and screen data directly to backers.
Sources: Zannier (2013)
References (1)
- Zannier, F. (2013, October 28). A bite of me. Kickstarter. https://www.kickstarter.com/projects/1461902402/a-bit-e-of-me In References
Digital afterlife
What happens to a person's online accounts and data after they die, and the arrangements they make in advance to pass on or delete them.
Sources: Tuerk (2013)
References (1)
- Tuerk, A. (2013, April 22). Plan your digital afterlife with Inactive Account Manager. Google Public Policy Blog. https://publicpolicy.googleblog.com/2013/04/plan-your-digital- afterlife-with.html In References
Phygital
Describes experiences and selves that blend physical and digital interactions, so a person's life and data span both worlds at once.
Sources: Borgne (2018)
References (1)
- Borgne, M. L. (2018, May 28). In a phygital world. Awabot. https://awabot.com/en/in-a- phygital-world In References
Privacy Self-Management
Daniel Solove's term for the legal approach of giving people notice and choice to manage their own privacy, which he argues often fails in practice.
Sources: Solove (2013, 2021)
References (2)
- Solove, D. J. (2013, May 20). Introduction: Privacy self-management and the consent dilemma. Harvard Law Review, 126(7), 1880–1903. https://harvardlawreview.org/print/vol- 126/introduction-privacy-self-management-and-the-consent-dilemma In References
- Solove, D. J. (2021) The myth of the privacy paradox. George Washington Law Review 89(1), 1–51. Available at SSRN: https://ssrn.com/abstract=3536265 In References
Trusted Compute Cells
Secure, personal computing units proposed by Hardjono and colleagues that hold an individual's data and run approved code so others get answers, not raw data.
Sources: Hardjono et al. (2014)
References (1)
- Hardjono, T., Deegan, P., & Clippinger, J. H. (2014). On the design of trustworthy compute frameworks for self-organizing digital institutions. In G. Meiselwitz (Ed.), Social Computing and Social Media (pp. 342–353). Springer. https://doi.org/10.1007/978-3- 319-07632-4_33 In References
Customer Information Industry
McKean's term for the businesses and practices that manage information customers volunteer about themselves, to deliver relevant experiences in return.
Sources: McKean (2014)
References (1)
- McKean, J. S. (2014). Customer’s new voice: Extreme relevancy and experience through volunteered customer information. John Wiley & Sons. In References
Digital safety box
PAOGA's name for its secure online vault where people store personal documents and data and share them with trusted parties.
Sources: PAOGA (2014)
References (1)
- PAOGA. (2014). Security is always excessive until it's not enough. https://web.archive.org/web/20161229195853/http://www.paoga.com/index.html In References
Hub-of-all-things
The Hub-of-all-Things (HAT), a UK research project and platform giving individuals their own data store and a market for sharing data in context.
Sources: Ng et al. (2014)
References (1)
- Ng, I. C. L., Scharf, K. A. & Maull, R. (2014, June 16–19). The market for contextual offerings: the multi-sided market platform of the hub-of-all-things (HAT) [Paper presentation]. 4th forum on markets and marketing, Karlstad University, Sweden. https://wrap.warwick.ac.uk/70317/ In References
Me2B
Price and Jaffe's term for relationships where the individual sets the terms with businesses, now also used for the person-to-business data relationship.
Sources: Price & Jaffe (2014)
References (1)
- Price, B., & Jaffe, D. (2014). Your customer rules!: Delivering the Me2B experiences that today’s customers demand. Jossey-Bass. In References
My Data Store
A Telecom Italia research tool that let people collect the personal data their mobile devices generate, see it, and control how it is shared.
Sources: Moiso et al. (2012), Vescovi et al. (2014)
References (2)
- Moiso, C., Antonelli, F., & Vescovi, M. (2012). How do I manage my personal data? A telco perspective. Proceedings of the International Conference on Data Technologies and Applications DATA,1, 123–128. https://doi.org/10.5220/0003996301230128 In References
- Vescovi, M., Lepri, B., Perentis, C., Moiso, C., & Chiara, L. (2014). My data store: Toward user awareness and control on personal data. UbiComp '14 Adjunct, 179–182. http://ubicomp.org/ubicomp2014/proceedings/ubicomp_adjunct/posters/p179- vescovi.pdf In References
Peer-To-Peer Cloud Storage Network
Storj's 2014 design for cloud storage in which encrypted files are split across many independent computers instead of one company's data centres.
Sources: Wilkinson (2014)
References (1)
- Wilkinson, S. (2014). Storj | A peer-to-peer cloud storage network. Storj.io https://www.storj.io/storj2014.pdf In References
Personal Big Data
The large, continuous record of a person's life captured by lifelogging devices and sensors, as described by Gurrin, Smeaton and Doherty.
Sources: Gurrin et al. (2014)
References (1)
- Gurrin, C., Smeaton, A., & Doherty, A. (2014). LifeLogging: Personal big data. Foundations and Trends in Information Retrieval, 8(1). https://doi.org/10.1561/1500000033 In References
Personal Data Cloud
Cloud-based services that gather, store and manage an individual's personal data from many sources in one place under their account.
Sources: Wang & Wang (2014)
References (1)
- Wang, J., & Wang, Z. (2014). A survey on personal data cloud. The Scientific World Journal, Article 969150. https://doi.org/10.1155/2014/969150 In References
Personal Information Management Service
Ctrl-Shift's term for services that help individuals collect, manage and use their own personal data for their own purposes.
Sources: Ctrl-Shift (2014)
References (1)
- Ctrl-Shift. (2014, October 20). How ‘privacy’ misses the point. https://web.archive.org/web/20220704064747/https://www.ctrl- shift.co.uk/news/general/2014/10/20/why-privacy-doesnt-matter In References
SafeAnswers
A method in MIT's openPDS where questions are run inside a person's data store and only the answer, not the raw data, is returned.
Sources: Montjoye et. al (2014)
References (1)
- Montjoye, Y.-A. de, Shmueli, E., Wang, S. S., & Pentland, A. S. (2014). openPDS: Protecting the privacy of metadata through SafeAnswers. PLOS ONE, 9(7), Article e98790. https://doi.org/10.1371/journal.pone.0098790 In References
Self Data
FING's concept of individuals producing, using and sharing their own personal data, under their control and for their own purposes.
Sources: Foundation Internet Nouvelle Génération (2014, 2017)
Data Collaborative
A partnership in which organisations from different sectors, often private and public, exchange or pool data to solve public problems.
Sources: Verhulst (2015)
References (1)
- Verhulst, S. G. (2015, April 22). Data collaboratives: exchanging data to improve people’s lives. Medium. https://sverhulst.medium.com/data-collaboratives-exchanging-data-to-improve- people-s-lives-d0fcfc1bdd9a In References
Internet of Me
The idea that connected devices and services increasingly form around the individual, producing and using data about that person's life.
Sources: Spicer (2015)
References (1)
- Spicer, A. (2015, January 20). What is the "internet" of me? World Economic Forum. https://www.weforum.org/agenda/2015/01/what-is-the-internet-of-me/ In References
Personal Information Management System
Tools and services that let individuals store, manage and decide how their personal data is shared and used, as described by the European Data Protection Supervisor.
Sources: Abiteboul et al. (2015), Buttarelli (2016a, 2016b), Attoresi & Moraes (2021)
References (4)
- Abiteboul, S., André, B., & Kaplan, D. (2015). Managing your digital life. Communications of the ACM, 58(5), 32–35. https://doi.org/10.1145/2670528 In References
- Attoresi, M., & Moraes, T. (2021, January 6). TechDispatch #3/2020 – Personal information management systems. European Union, European Data Protection Supervisor. https://www.edps.europa.eu/data-protection/our- work/publications/techdispatch/techdispatch-32020-personal-information In References
- Buttarelli, G. (2016a, September). EDPS opinion on personal information management systems [Opinion paper]. European Union, European Data Protection Supervisor. https://www.edps.europa.eu/sites/default/files/publication/16-10- 20_pims_opinion_en.pdf In References
- Buttarelli, G. (2016b, October 20). Executive summary of the opinion of the European Data Protection Supervisor on personal information management systems. Official Journal of the European Union. https://www.edps.europa.eu/sites/default/files/publication/17-01- 11_pims_ex_summ_en_0.pdf In References
Data Commons
A shared platform that brings data, storage, computing and tools together so a research community can manage, analyse and share data.
Sources: Grossman et al. (2016)
References (1)
- Grossman, R. L., Heath, A., Murphy, M., Patterson, M., & Wells, W. (2016). A case for data commons. Computing in Science & Engineering, 18(5), 10–20. https://doi.org/10.1109/MCSE.2016.92 In References
Data Stewards
People or software responsible for managing an organisation's data quality, use and policies on behalf of its owners.
Sources: Peyret (2016)
References (1)
- Peyret. (2016, February 21). The Forrester Wave: Data governance stewardship applications, Q1 2016. Forrester. https://www.forrester.com/report/the-forrester-wave-data- governance-stewardship-applications-q1-2016/RES117915 In References
Databox
A UK research platform giving individuals a personal device that collects their data and lets approved apps use it locally under their control.
Sources: Crabtree et al. (2016), Haddadi et al. (2015)
References (2)
- Crabtree, A., Lodge, T., Colley, J., Greenhalgh, C., Mortier, R., & Haddadi, H. (2016). Enabling the new economic actor: data protection, the digital economy, and the databox. Personal and Ubiquitous Computing, 20(6), 947–957. https://doi.org/10.1007/s00779-016-0939-3 In References
- Haddadi, H., Howard, H., Chaudhry, A., Crowcroft, J., Madhavapeddy, A., & Mortier, R. (2015). Personal data: Thinking inside the box. https://doi.org/10.48550/arXiv.1501.04737 In References
Decentralized Public Key Infrastructure
A public key infrastructure in which no single certificate authority controls identifiers; people register and manage their own keys, for example on a blockchain.
Sources: Allen et al. (2016)
References (1)
- Allen, C., Brock, A., Buterin, I., Callas, J., Dorje, D., Lundkvist, C., Kravchenko, P., Nelson, J., Reed, D., Sabadello, M., Slepak, G., Thorp, N., & T Wood, H. (2016). Decentralized public key infrastructure. GitHub. https://github.com/WebOfTrustInfo/rwot1- sf/blob/master/draft-documents/Decentralized-Public-Key-Infrastructure-CURRENT.md In References
Do-it-yourself-data protection
Individuals protecting their own data with tools and habits, which Matzner and colleagues ask may be a burden as much as empowerment.
Sources: Matzner et al. (2016)
References (1)
- Matzner, T., Masur, P. K., Ochs, C., & von Pape, T. (2016). Do-it-yourself data protection — empowerment or burden? In S. Gutwirth, R. Leenes, & P. De Hert (Eds.), Data protection on the move |Current developments in ICT and privacy/data protection (pp. 277–305). Springer. https://doi.org/10.1007/978-94-017-7376-8_11 In References
Information Fiduciaries
Jack Balkin's idea that companies holding people's personal data should owe them duties of care and loyalty, like doctors or lawyers.
Sources: Balkin (2016, 2024)
References (1)
- Balkin, J. (2016). Information fiduciaries and the first amendment. UC Davis Law Review, 49(4), 1185–1221. https://lawreview.law.ucdavis.edu/archives/49/4 In References
Personal Data Economy
The market in which individuals exchange their personal data with organisations for value, and increasingly manage that exchange themselves.
Sources: Juniper Research (2016)
References (1)
- Juniper Research. (2016). Understanding the personal data economy | The emergence of a new data value-exchange [White paper]. Mobile Ecosystem Forum. https://mobileecosystemforum.com/personal-data-economy-whitepaper In References
Personal Online Database (POD)
A personal online data store in the Solid project where a person keeps their data and grants apps permission to read or write it.
Sources: Mansour et al. (2018)
Consent intermediaries
Third-party services that manage people's consent to data use on their behalf, to ease the burden of privacy self-management.
Sources: Lehtiniemi & Kortesniemi (2017)
References (1)
- Lehtiniemi, T., & Kortesniemi, Y. (2017). Can the obstacles to privacy self-management be overcome? Exploring the consent intermediary approach. Big Data & Society, 4(2), 2053951717721935. https://doi.org/10.1177/2053951717721935 In References
Identity Metasystem
Microsoft's design for an interoperable layer joining many identity systems, so people can choose and use different digital identities consistently.
Sources: Cameron & Jones (2017)
References (1)
- Cameron, K., & Jones, M. B. (2017, May). Design rationale behind the identity metasystem architecture. Microsoft. https://www.microsoft.com/en-us/research/wp- content/uploads/2017/05/Identity_Metasystem_Design_Rationale.pdf In References
Personal health information management system (PHIMS)
A system that lets individuals collect, store and manage their own health information and share it with providers or programmes they choose.
Sources: Neyens & Childers (2017), Pawar et al. (2022)
References (2)
- Neyens, D. M., & Childers, A. K. (2017). Determining barriers and facilitators associated with willingness to use a personal health information management system to support worksite wellness programs. American Journal of Health Promotion, 31(4), 310–317. https://doi.org/10.4278/ajhp.140514-QUAN-204 In References
- Pawar, P., Parolia, N., Shinde, S., Edoh, T. O., & Singh, M. (2022). eHealthChain — a blockchain-based personal health information management system. Annals of Telecommunications, 77(1-2), 33–45. https://doi.org/10.1007/s12243-021-00868-6 In References
The Internet of Us
Michael Lynch's book arguing that constant connection gives people more information but less understanding, raising questions about knowledge and autonomy.
Sources: Lynch (2016)
References (1)
- Lynch, M. P. (2016). The internet of us: knowing more and understanding less in the age of big data. Liveright. In References
Verified Claims
Statements about a person, such as age or qualifications, that an issuer signs digitally so others can check them, per the W3C data model.
Sources: Sporny & Longley (2017)
References (1)
- Sporny, M., & Longley, (2017, August 3). Verifiable claims data model and representations. W3C (World Wide Web Consortium). https://www.w3.org/TR/2017/WD-verifiable- claims-data-model-20170803/ In References
Data Trusts
A legal structure in which independent trustees manage data on behalf of a group of people, deciding its use in their interest.
Sources: Hardinges (2018), Mills (2019)
References (2)
- Hardinges, J. (2018, October 1). Defining a ‘data trust.’ Open Data Institute. https://theodi.org/article/defining-a-data-trust In References
- Mills, S. (2019). Who owns the future? Data trusts, data commons, and the future of data ownership [Working draft]. https://doi.org/10.2139/ssrn.3437936 In References
Information Bank
A Japanese certified business that holds people's personal data under their instructions and shares it with third parties on their behalf, returning benefits to them.
Sources: Hemmi (2019), Ministry of Internal Affairs and Communications Japan (2022)
References (2)
- Hemmi, J. (2019, May 9). Japan’s ‘information banks’ to let users cash in on personal data. Nikkei Asia. https://asia.nikkei.com/Business/Business-trends/Japan-s-information- banks-to-let-users-cash-in-on-personal-data In References
- Ministry of Internal Affairs and Communications Japan. (2022, June 05). As a result of the call for public comments on the “Guidelines for Certification of Information Trust Functions Ver. 2.2 (draft).” [Press release]. https://www.meti.go.jp/press/2022/06/20220630006/20220630006.html In References
Legal Entity Identifier (LEI)
A 20-character global code, overseen by the Global Legal Entity Identifier Foundation, that uniquely identifies a legal entity such as a company.
Sources: Global Legal Entity Identity Foundation (n.d. a)
Mediators of Individual Data
Organisations that would represent many people collectively, bargaining with companies over the terms and payment for using their members' personal data.
Sources: Lanier & Weyl (2018)
References (1)
- Lanier, J., & Weyl, E. G. (2018, September 26). A blueprint for a better digital society. Harvard Business Review. https://hbr.org/2018/09/a-blueprint-for-a-better-digital-society In References
Person-controlled personal data
Personal data held in a store the individual owns and controls, such as a Hub-of-all-Things account, so they can use, exchange or trade it.
Sources: Ng (2018)
References (1)
- Ng, I. (2018). The market for person-controlled personal data with the Hub-of-all-Things (HAT) [Working paper]. Warwick Manufacturing Group. https://wrap.warwick.ac.uk/101708/ In References
Data Cooperative
A member-owned organisation that pools members' personal data, governs it democratically, and decides together how it may be shared or used, for example for health research.
Sources: Hafen (2019)
References (1)
- Hafen, E. (2019). Personal data cooperatives – A new data governance framework for data donations and precision health. In J. Krutzinna & L. Floridi (Eds.), The ethics of medical data donation (pp. 141–149). Springer, Cham. https://doi.org/10.1007/978-3-030-04363-6_9 In References
Decentralized Web Node
A Decentralized Identity Foundation specification for a personal data store and message relay, addressed by a person's identifier, that apps can read from and write to with permission.
Sources: Buchner (2019), Buchner et al. (2024),
References (2)
- Buchner, D. (2019, July 23). Rhythm and melody: How hubs and agents rock together. Decentralized Identity Foundation. https://medium.com/decentralized-identity/rhythm- and-melody-how-hubs-and-agents-rock-together-ac2dd6bf8cf4 In References
- Buchner, D. (Ed.). (2024). Decentralized web node companion guide. Decentralized Identity Foundation. https://identity.foundation/decentralized-web-node/guide/v0.0.1 In References
Digital Guardianship
An arrangement in which a trusted guardian manages a digital identity and its credentials on behalf of a person who cannot fully manage them alone.
Sources: Sovrin Guardianship Task Force (2023),
References (1)
- Sovrin Guardianship Working Group. (2023, April). On guardianship in self-sovereign identity [White Paper]. Sovrin Foundation. https://sovrin.org/wp-content/uploads/Guardianship- Whitepaper-V2.pdf In References
Personal Data Co-Operatives
Co-operatives in which members deposit copies of their personal data, keep control over each use, and jointly decide on data donations for research and public benefit.
Sources: Hafen (2019)
References (1)
- Hafen, E. (2019). Personal data cooperatives – A new data governance framework for data donations and precision health. In J. Krutzinna & L. Floridi (Eds.), The ethics of medical data donation (pp. 141–149). Springer, Cham. https://doi.org/10.1007/978-3-030-04363-6_9 In References
Personal Vault
A protected folder in Microsoft OneDrive, opened with extra identity verification, where people store their most sensitive files and documents.
Sources: Microsoft (n.d.)
References (1)
- Microsoft. (n.d.). Personal Vault: Store Sensitive Files – Microsoft OneDrive: https://www.microsoft.com/en-us/microsoft-365/onedrive/personal-vault In References
Semantic Container
An OwnYourData approach that packages data together with its description, provenance and usage policy so it can move between systems while keeping its terms.
Sources: OwnYourData (2019)
References (1)
- OwnYourData. (2019). Semantic container for data mobility [Video]. YouTube. https://www.ownyourdata.eu/en/semcon/ In References
Verified Credentials
Tamper-evident digital credentials, such as a licence or diploma, that a person holds and presents, and whose issuer and integrity anyone can check cryptographically (W3C Verifiable Credentials).
Sources: Sporny & Longley (2019)
References (1)
- Sporny, M., & Longley, (2019, February 8). Verifiable credentials data model 1.0. W3C (World Wide Web Consortium). https://www.w3.org/TR/2019/WD-verifiable-claims-data- model-20190208/ In References
Data ID Card
One of the data management approaches tested in a UK survey: an identity card for managing one's personal data that includes the option to opt out of data-gathering services.
Sources: Hartman et al. (2020)
References (1)
- Hartman, T., Kennedy, H., Steedman, R., & Jones, R. (2020). Public perceptions of good data management: Findings from a UK-based survey. Big Data & Society, 7(1). https://doi.org/10.1177/2053951720935616 In References
Data Safe
A personal data vault (Dutch: datakluis) where people keep their own data and choose which organisations, such as media companies, may use it.
Sources: Loohuis (2020), Mediahuis (2022)
References (2)
- Loohuis, K. (2020, November 26). Data safes will give users control over their data. ComputerWeekly.Com. https://www.computerweekly.com/news/252492752/Data-safes- will-give-users-control-over-their-data In References
- Mediahuis. (2022, October 17). DPG Media, Mediahuis, NPO, RTL Nederland en Talpa Network gaan samenwerken in onderzoek naar Nederlandse Datakluis [DPG Media, Mediahuis, NPO, RTL Nederland and Talpa Network to collaborate on research into Dutch data vaults]. https://www.mediahuis.nl/samenwerking-persoonlijke-datakluis In References
Distrust and Verify
A reversal of "trust, but verify": start from distrust, and believe only what can be checked. It was said publicly by US Secretary of State Mike Pompeo in 2020. The same shift runs through technology: Zero Trust security ("never trust, always verify"), and tools such as zero-knowledge proofs and verifiable credentials that let anyone check a claim without trusting, or seeing more than they need of, the person making it. Society is moving from trust by default to verification by design. Also said as "distrust but verify".
Sources: Pompeo (2020); related: Reagan (1987), Kindervag (2010), Goldwasser et al. (1985)
References (4)
- Pompeo, M. R. (2020, July 23). Communist China and the free world's future [Speech]. U.S. Department of State. https://2017-2021.state.gov/communist-china-and-the-free-worlds-future-2/ https://web.archive.org/web/20211216021219/https://2017-2021.state.gov/communist-china-and-the-free-worlds-future-2/index.html In References
- Reagan, R. (1987, December 8). Remarks on signing the Intermediate-Range Nuclear Forces Treaty [Speech transcript]. Ronald Reagan Presidential Library & Museum. https://www.reaganlibrary.gov/research/speeches/120887c In References
- Kindervag, J. (Producer). (2010). No more chewy centers: Introducing the zero trust model of information security [Webinar]. Forrester. https://www.forrester.com/webinar/No%2BMore%2BChewy%2BCenters%2BThe%2BZ eroTrust%2BModel%2BOf%2BInformation%2BSecurity/WEB6741 In References
- Goldwasser, S., Micali, S., & Rackoff, C. (1985). The knowledge complexity of interactive proof-systems. In Proceedings of the Seventeenth Annual ACM Symposium on Theory of Computing (pp. 291–304). Association for Computing Machinery. https://doi.org/10.1145/22145.22178 In References
Independent Data Stewardship
An approach in which a responsible, independent party manages a person's data for them, either for all of it or for specific contexts such as health or finance.
Sources: Hartman et al. (2020)
References (1)
- Hartman, T., Kennedy, H., Steedman, R., & Jones, R. (2020). Public perceptions of good data management: Findings from a UK-based survey. Big Data & Society, 7(1). https://doi.org/10.1177/2053951720935616 In References
My Data Operator
An organisation that, following MyData principles, provides services and infrastructure that let people see, manage and authorise flows of their personal data between organisations.
Sources: Langford et al. (2020)
References (1)
- Langford, J., Poikola, A., Janssen, W., Lähteenoja, V., & Rikken, M. (2020). Understanding MyData operators. MyData Global. https://mydata.org/wp- content/uploads/sites/5/2020/04/Understanding-Mydata-Operators-pages.pdf In References
Personal Data Spaces
A European Commission concept for environments where individuals hold and control their personal data and decide how it is shared within common European data spaces.
Sources: European Commission (2020)
References (1)
- European Commission. (2020, July 31). Data sharing in the EU – Common European data spaces (new rules). https://ec.europa.eu/info/law/better-regulation/have-your- say/initiatives/12491-Data-sharing-in-the-EU-common-European-data-spaces-new-rules- _en In References
Smart Data
A UK government programme that lets consumers instruct businesses to share their data securely with authorised third parties, extending the open banking model to other sectors.
Sources: Department for Business, Energy and Industrial Strategy (2020)
References (1)
- Department for Business, Energy and Industrial Strategy. (2020, September). Terms of reference for the Department for Business, Energy and Industrial Strategy to establish a cross- sector Smart Data working group. GOV.UK. https://www.gov.uk/government/groups/smart-data-working-group. In References
@Sign
An @sign is a personal address on Atsign's atPlatform that a person owns and uses to control, encrypt and share their data directly with other people and devices.
Sources: AtSign (2021)
References (1)
- Atsign. (2021). The atPlatform white paper [White paper]. https://atsign.com/resources/white- papers/the-platform-white-paper/ In References
Authentic Data
Data carrying cryptographic proof of its origin and integrity, so anyone receiving it can verify where it came from and that nobody has altered it.
Sources: Huseby (2021)
References (1)
- Huseby, D. (2021, February 21). The authentic data economy. Medium. https://dwhuseby.medium.com/the-authentic-data-economy-9802da67e1fa In References
Authentic Data Economy
A proposed economy in which data with verifiable provenance is exchanged under its owners' control, rather than being collected and resold by intermediaries.
Sources: Huseby (2021)
References (1)
- Huseby, D. (2021, February 21). The authentic data economy. Medium. https://dwhuseby.medium.com/the-authentic-data-economy-9802da67e1fa In References
Data Custodian
A type of data intermediary that holds and protects data for the people or organisations it belongs to and manages access to it on their behalf.
Sources: Centre for Data Ethics and Innovation (2021)
References (1)
- Centre for Data Ethics and Innovation. (2021, July 22). Unlocking the value of data: Exploring the role of data intermediaries. GOV.UK. https://www.gov.uk/government/publications/unlocking-the-value-of-data-exploring-the- role-of-data-intermediaries Centre for Data Ethics and Innovation & Department for Science, Innovation and Technology. (2022, June 22). Polling data on public attitudes towards smart data schemes [Policy paper]. GOV.UK. https://www.gov.uk/government/publications/polling-data-on-public- attitudes-towards-smart-data-schemes In References
Data Exchange
A type of data intermediary that provides a platform where data holders and data users find each other and share or trade data under agreed terms.
Sources: Centre for Data Ethics and Innovation (2021)
References (1)
- Centre for Data Ethics and Innovation. (2021, July 22). Unlocking the value of data: Exploring the role of data intermediaries. GOV.UK. https://www.gov.uk/government/publications/unlocking-the-value-of-data-exploring-the- role-of-data-intermediaries Centre for Data Ethics and Innovation & Department for Science, Innovation and Technology. (2022, June 22). Polling data on public attitudes towards smart data schemes [Policy paper]. GOV.UK. https://www.gov.uk/government/publications/polling-data-on-public- attitudes-towards-smart-data-schemes In References
Decentralized Identifier
A W3C identifier that a person or organisation creates and controls themselves, and that others can verify cryptographically without relying on a central registry.
Sources: Hamilton-Duffy et al. (2021)
References (1)
- Hamilton-Duffy, K., Grant, R., & Gropper, A. (2021). Use cases and requirements for decentralized identifiers. W3C (World Wide Web Consortium). https://www.w3.org/TR/did-use-cases In References
Digital Personal Data Stores
Apps or services where people collect, keep and manage their own personal data and decide which organisations may access it.
Sources: Mariani et al. (2021)
References (1)
- Mariani, M. M., Ek Styven, M., & Teulon, F. (2021). Explaining the intention to use digital personal data stores: An empirical study. Technological Forecasting and Social Change, 166, Article 120657. https://doi.org/10.1016/j.techfore.2021.120657 In References
Digital Wallet
An app that holds a person's identity credentials and cryptographic keys so they can receive, store and present verifiable proofs about themselves.
Sources: Lemoie (2021)
References (1)
- Lemoie, K. (2021). Determinants of behavioral intention to use a self-sovereign identity digital wallet: Extending the UTAUT with trustworthiness (Publication No. 28716913) [Doctoral dissertation, Fielding Graduate University]. ProQuest Dissertation and Theses Global. https://www.proquest.com/openview/31100c6b38df3ef649156d35d0296db4/1 In References
Identity Agent
Software that acts for a person in managing their identity data, credentials and relationships, representing their interests when they deal with online services.
Sources: Trevithick (2021)
Recognized consent management services
Services accredited under Germany's TTDSG privacy law that store people's consent decisions, for example about cookies, and apply them across websites for them.
Sources: Bernemann & Kneuper (2023)
References (1)
- Bernemann, J., & Kneuper, R. (2023). Personal information management systems nach TTDSG. [Personal information management systems according to the German Telecommunications Telemedia Privacy Act]. HMD Praxis der Wirtschaftsinformatik, 60, 308–321. https://doi.org/10.1365/s40702-023-00946-4 In References
Self-Sovereign Data Storage
Nuggets' encrypted storage for personal data, built so that only the individual holds the keys and can unlock or share their data.
Sources: Nuggets (n.d.)
References (1)
- Nuggets. (n.d.). Self-sovereign data storage. https://nuggets.life/self-sovereign-data-storage.html In References
Agents
Software that works with a person's digital wallet and acts on their behalf, for example exchanging credentials and messages with other parties' agents.
Sources: Windley (2022)
References (1)
- Windley, P. (2022, December 16). Wallets and agents. Technometria. https://www.windley.com/archives/2022/12/wallets_and_agents.shtml In References
Data Passport
Dataswyft's method for sharing verified credentials, such as health or test records, from a person's personal data account so others can check them.
Sources: Dataswyft (2021)
References (1)
- Dataswyft. (2021, December 2). Sharing & verifying digital credentials through data passporting. https://www.dataswyft.io/news/verifying-digital-credentials-data- passporting In References
Digital Fiduciary
A data intermediary with legal duties of care and loyalty to the individuals it serves, which manages their data in their interest.
Sources: Flanagan (2022)
References (1)
- Flanagan, A. J. (2022). Advancing digital agency: The power of data intermediaries. World Economic Forum. https://www.weforum.org/reports/advancing-digital-agency-the- power-of-data-intermediaries In References
Digital Self-Determination
The principle that people and communities should decide for themselves how data about them is collected, used and shared, and be able to act on those decisions.
Sources: Federal Department of the Environment, Transport, Energy and Communications & Federal Department of Foreign Affairs (2022), Verhulst (2023)
References (1)
- Verhulst, S. G. (2023). Operationalizing digital self-determination. Data & Policy, 5, Article e14. https://doi.org/10.1017/dap.2023.11 In References
Do-it-yourself data protection
Steps individuals take themselves to protect their personal data, such as using privacy tools or changing settings, rather than relying on laws or companies.
Sources: Piasecki et al. 2022
Encrypted Data Vaults
A Decentralized Identity Foundation specification for storing data encrypted on the client side, so the hosting provider cannot read what it holds.
Sources: Sporny & Trider (2022)
References (1)
- Sporny, M., & Trider, D. (Eds.). (2022). Encrypted data vaults v0.1. Decentralized Identity Foundation. https://identity.foundation/edv-spec In References
Get My Data
A service, founded in 2020 and later suspended, with the tagline 'All of Your Data. One Request.', for getting back one's personal data from many companies at once.
Sources: Get My Data (2022)
Non-Profit Data Intermediaries
Data intermediaries, such as data trusts or co-operatives, that manage people's data for their members or the public good rather than for profit.
Sources: Flanagan (2022)
References (1)
- Flanagan, A. J. (2022). Advancing digital agency: The power of data intermediaries. World Economic Forum. https://www.weforum.org/reports/advancing-digital-agency-the- power-of-data-intermediaries In References
Personal Data Account
Dataswyft's term for a personal data store account that an individual owns and that apps can create for their users to hold and share data.
Sources: Dataswyft (2022)
References (1)
- Dataswyft. (2022, March 14). Create personal data accounts for your users in less than 5 minutes [Video]. YouTube. https://www.youtube.com/watch?v=zniJ1PrcTyc In References
Private For-Profit Data Intermediaries
Commercial companies that act as data intermediaries, managing or brokering people's data access and sharing as a business.
Sources: Flanagan (2022)
References (1)
- Flanagan, A. J. (2022). Advancing digital agency: The power of data intermediaries. World Economic Forum. https://www.weforum.org/reports/advancing-digital-agency-the- power-of-data-intermediaries In References
Public Data Intermediaries
Government or public bodies that act as data intermediaries, managing or overseeing how people's data is shared for public purposes.
Sources: Flanagan (2022)
References (1)
- Flanagan, A. J. (2022). Advancing digital agency: The power of data intermediaries. World Economic Forum. https://www.weforum.org/reports/advancing-digital-agency-the- power-of-data-intermediaries In References
Verified Legal Entity Identifier (vLEI)
GLEIF's verifiable credential version of the Legal Entity Identifier, which proves an organisation's identity and the roles of people authorised to act for it.
Sources: Global Legal Entity Identity Foundation (n.d. b)
Digital Public Infrastructure
Shared public digital systems, such as identity, payments and data-sharing platforms, that governments provide for society to build services on.
Sources: Kuzev & Hall (2023), AtSign (2024)
References (2)
- Atsign. (2024). Digital public infrastructure powered by networking 2.0. https://atsign.com/resources/articles/digital-public-infrastructure-powered-by- networking-2-0 In References
- Kuzev, P., & Hall, I. (2023). EU regulation, Brazil’s open health, and the India stack: A common platform approach to integrated digital public infrastructure [Policy brief]. Observer Research Foundation. https://policycommons.net/artifacts/3867657/eu- regulation-brazils-open-health-and-the-india-stack/4673915 In References
Personal Data Warehouses
Personal databases where individuals gather their own data exported from many online services, so they can explore and reuse it themselves.
Sources: Willison (2020)
References (1)
- Willison, S. (Host) (2020). Personal data warehouses: Reclaiming your data [Video]. YouTube. OCTO Speaker Series #4 Simon Willison. GitHub. https://www.youtube.com/watch?v=l1EFThsAFgs In References
Personal Digital Agent Protocol
A protocol proposed at the IETF for software agents that people choose to act for them and to control how services access their data.
Sources: Gropper (2023)
References (1)
- Gropper, A. (2023, November 5). Personal digital agent protocol (pdap). [Hot RFC Lightning Talks (hotRFC)]. Internet Engineering Task Force. https://datatracker.ietf.org/meeting/118/materials/slides-118-hotrfc-sessa-10-personal- digital-agent-protocol-01 In References
Trust Framework
A set of rules and standards, such as the UK digital identity and attributes trust framework, that identity and data providers are certified against so others can trust them.
Sources: Department for Digital, Culture, Media & Sport & Department for Science, Innovation & Technology (2023)
References (1)
- Department for Digital, Culture, Media & Sport, & Department for Science, Innovation and Technology (2023, July 20). UK digital identity and attributes trust framework–beta version (0.3) [Policy paper]. GOV.UK. https://www.gov.uk/government/publications/uk-digital-identity-and-attributes-trust- framework-beta-version/uk-digital-identity-and-attributes-trust-framework-beta-version In References
Web 5
A platform proposed by TBD, part of Block, that combines identifiers, verifiable credentials and web nodes so people own their identity and data across apps.
Sources: Jones (2023)
References (1)
- Jones, A. (2023, September 25). Web5: A fresh blueprint for app development. TBD. https://developer.tbd.website/blog/why-would-companies-embrace-web5 In References
Empowerment Tech
An umbrella term for tools that put individuals in control of their identity and data, such as digital wallets, personal data stores and personal AI agents.
Sources: Smith (2024)
References (2)
- Smith, J. (2024, March 7). From digital wallets and data stores, to sovereign agents and personal AI . . . what does empowerment tech really mean? Customer Futures. https://www.customerfutures.com/p/from-digital-wallets-and-data-stores In References
- Smith, J., Deakins, S., & Lampinen, M., Mobile Ecosystem Forum (2024, May 21). Empowering the individual: PIMS & personal AI [Video]. YouTube. https://mobileecosystemforum.com/mef-connects-id-data-2024/#ai In References
Personal Data eXchange
Mydex's term for infrastructure that lets individuals exchange data between their personal data store and organisations under their own control.
Sources: Mitchell (2024)
References (1)
- Mitchell, A. (2024, March 13). What is a personal data store? Medium. https://medium.com/mydex/what-is-a-personal-data-store-a583f7ef9be3 In References
Personal Data Management Platform
A platform for individuals to gather, organise and control the sharing of their personal data; it is cited only as a personal communication, so its exact scope is unconfirmed.
Sources: N. Venezia, personal communication, 3 May 2024.
Profile Information Management System
An NHS system where authorised health and care staff enter and update service information that is published on NHS.UK and shared with third parties; despite the acronym, it is not a personal PIMS.
Sources: NHS (2024)
References (1)
- NHS. (2024, January). Profile information management system (PIMS). NHS Digital. United Kingdom. https://digital.nhs.uk/data-and-information/keeping-data-safe-and-benefitting- the-public/gdpr/gdpr-register/profile-information-management-system-pims In References
Human Context Protocol (HCP)
An open protocol, from the Loyal Agents collaboration of the Stanford Digital Economy Lab and the Consumer Reports Innovation Lab, that connects AI assistants to the services holding a person's memory and preferences, defining how preferences are described, searched and updated, so they can move with the person from one AI to another.
Sources: Shah, South, et al. (n.d.); Stanford Digital Economy Lab (2026, n.d.-a)
References (3)
- Shah, A., South, T., Evans, T., Kirk, H. R., Pei, J., Trask, A., Weyl, E. G., et al. (n.d.). Robust AI personalization controls: The Human Context Protocol. Stanford Digital Economy Lab. https://digitaleconomy.stanford.edu/project/loyal-agents/hcp-human-context-protocol/ In References
- Stanford Digital Economy Lab. (2026, March 16). The future of personal AI: Portable and persistent personal memory through a unified Human Context Protocol [Report]. https://digitaleconomy.stanford.edu/publication/the-future-of-personal-ai-portable-and-persistent-personal-memory-through-a-unified-human-context-protocol/ In References
- Stanford Digital Economy Lab. (n.d.-a). Human Context Protocol (HCP) [Research project]. https://digitaleconomy.stanford.edu/project/loyal-agents/hcp-human-context-protocol/ In References
Portable Memory
A user-governed layer of personal context (preferences, knowledge, experiences, credentials) that persists across AI interactions, moves between tools and can be shared selectively by role, consent and purpose, so it is not locked inside one AI platform.
Sources: Stanford Digital Economy Lab (2026, n.d.-b)
References (2)
- Stanford Digital Economy Lab. (2026, March 16). The future of personal AI: Portable and persistent personal memory through a unified Human Context Protocol [Report]. https://digitaleconomy.stanford.edu/publication/the-future-of-personal-ai-portable-and-persistent-personal-memory-through-a-unified-human-context-protocol/ In References
- Stanford Digital Economy Lab. (n.d.-b). Portable memory [Research project]. https://digitaleconomy.stanford.edu/project/portable-memory/ In References
1890s
1920s
1940s
1960s
1970s
1980s
1990s
2000s
- Data governance 2000
- Semantic Web 2000
- Right Side Up 2001
- Data Vault 2002
- Augmented Social Network 2003
- Customer Managed Interactions 2003
- Personal Data Lockbox 2003
- Privacy Preserving Reputation Management 2003
- Stuff I've seen 2003
- Personal Cloud 2004
- OntoPIM 2005
- Personal Knowledge Bank 2005
- Semex System 2005
- The Laws of Identity 2005
- Data Commons 2006
- iMeMex 2006
- Lifebits 2006
- Personal Database 2006
- Vendor Relationship Management Tool 2006
- Web 3.0 2006
- Healthvault 2007
- Information Cards 2007
- Linked Data 2007
- Open Data 2007
- Quantified Self 2007
- Distributed personal web-service 2008
- Polis 2008
- Privacy by Design 2008
- Lifelogging 2009
- Personal Data Stream 2009
- The new oil 2009
- Virtual Individual Server 2009
2010s
- Customer Managed Profiling System 2010
- Personal Cloud Butler 2010
- Personal Container 2010
- Personal Data Ecosystem 2010
- Personal Data Server 2010
- Personal Data Service 2010
- Personal Data Vault 2010
- Privacy-Preserving Technologies 2010
- Zero Trust 2010
- Federated Social Web 2011
- midata 2011
- Personal Applications 2011
- Personal Data Analytics 2011
- Personal Data Bank 2011
- Personal Data Locker 2011
- Personal Data: A New Asset Class 2011
- Personal informatics 2011
- Intention Economy 2012
- Life management platform 2012
- Self-Sovereign Identity 2012
- Unbiased Private Data 2012
- Verified Social Reputation 2012
- A Bite of Me 2013
- Digital afterlife 2013
- Phygital 2013
- Privacy Self-Management 2013
- Trusted Compute Cells 2013
- Customer Information Industry 2014
- Digital safety box 2014
- Hub-of-all-things 2014
- Me2B 2014
- My Data Store 2014
- Peer-To-Peer Cloud Storage Network 2014
- Personal Big Data 2014
- Personal Data Cloud 2014
- Personal Information Management Service 2014
- SafeAnswers 2014
- Self Data 2014
- Your AntiSocial Network 2014
- Data Collaborative 2015
- Internet of Me 2015
- Personal Information Management System 2015
- Data Commons 2016
- Data Stewards 2016
- Databox 2016
- Decentralized Public Key Infrastructure 2016
- Do-it-yourself-data protection 2016
- Information Fiduciaries 2016
- Personal Data Economy 2016
- Personal Online Database (POD) 2016
- Consent intermediaries 2017
- Identity Metasystem 2017
- Personal health information management system (PHIMS) 2017
- The Internet of Us 2017
- Verified Claims 2017
- Data Trusts 2018
- Information Bank 2018
- Legal Entity Identifier (LEI) 2018
- Mediators of Individual Data 2018
- Person-controlled personal data 2018
- Data Cooperative 2019
- Decentralized Web Node 2019
- Digital Guardianship 2019
- Personal Data Co-Operatives 2019
- Personal Vault 2019
- Semantic Container 2019
- Verified Credentials 2019
2020s
- Data ID Card 2020
- Data Safe 2020
- Distrust and Verify 2020
- Independent Data Stewardship 2020
- My Data Operator 2020
- Personal Data Spaces 2020
- Smart Data 2020
- @Sign 2021
- Authentic Data 2021
- Authentic Data Economy 2021
- Data Custodian 2021
- Data Exchange 2021
- Decentralized Identifier 2021
- Digital Personal Data Stores 2021
- Digital Wallet 2021
- Identity Agent 2021
- Recognized consent management services 2021
- Self-Sovereign Data Storage 2021
- Agents 2022
- Data Passport 2022
- Digital Fiduciary 2022
- Digital Self-Determination 2022
- Do-it-yourself data protection 2022
- Encrypted Data Vaults 2022
- Get My Data 2022
- Non-Profit Data Intermediaries 2022
- Personal Data Account 2022
- Private For-Profit Data Intermediaries 2022
- Public Data Intermediaries 2022
- Verified Legal Entity Identifier (vLEI) 2022
- Digital Public Infrastructure 2023
- Personal Data Warehouses 2023
- Personal Digital Agent Protocol 2023
- Trust Framework 2023
- Web 5 2023
- Empowerment Tech 2024
- Personal Data eXchange 2024
- Personal Data Management Platform 2024
- Profile Information Management System 2024
- Human Context Protocol (HCP) 2026
- Portable Memory 2026
| Term | Year | Theme | Sources |
|---|---|---|---|
| Right to privacy | 1890 | Privacy and rights | Warren and Brandeis (1890) |
| Right to be let alone | 1928 | Privacy and rights | Olmstead v. U.S., 277 U.S. 438 (1928) |
| MEMEX Machine | 1945 | Personal informatics and lifelogging | Bush (1945, 1959/1991, 1967/1991) |
| Privacy | 1964 | Privacy and rights | Westin (1967) |
| Ombudsman | 1973 | Data intermediaries and governance | Ware (1973) |
| Information almost wants to be free, but it also wants to be expensive | 1984 | Data value and markets | Brand (1984), Getty Images (1984), Gans (2015) |
| Zero-Knowledge Proof | 1985 | Standards and protocols | Goldwasser et al. (1985) |
| Trust, but Verify | 1987 | Identity | Lenin (1914/1972); Reagan (1987); Massie (2013) |
| Ubiquitous computing (Ubicomp) tools | 1991 | Personal informatics and lifelogging | Weiser (1991), Li et al. (2011) |
| Infomediaries | 1997 | Data intermediaries and governance | Hagel & Rayport (1997), Hagel & Singer (1999) |
| National Information Exchange Marketplace | 1997 | Data value and markets | Laudon (1997) |
| DigitalMe | 1999 | Identity | Novell (1999) |
| meBusiness | 1999 | Identity | Novell (1999) |
| Personal Data Store | 1999 | Personal data stores | Alessi (2019), Crabtree et al. (2016, 2018), Dataswyft (2022), Eclipse Foundation (2008), Fallatah et al. (2023), Montjoye et al. (2014), Mun et al. (2010), Mydex Community Interest Company (2010), Owano (2013), Reed (2010a), Royal Society (2019), Trevithick (2010a), Vescovi et al. (2014), World Economic Forum (2013) |
| Data governance | 2000 | Data intermediaries and governance | Ladley (2019) |
| Semantic Web | 2000 | Standards and protocols | Berners-Lee et al. (2000) |
| Right Side Up | 2001 | Data intermediaries and governance | Mitchell (2001) |
| Data Vault | 2002 | Data intermediaries and governance | Linstedt (2002) |
| Augmented Social Network | 2003 | Identity | Jordan et al. (2003) |
| Customer Managed Interactions | 2003 | Data intermediaries and governance | Watson (2003, 2004), Watson et al. (2005), Parasuraman (2006) |
| Personal Data Lockbox | 2003 | Personal data stores | Hayes-Roth (2004), Yeung & Sandström (2004); related: Siegel (2010), Mun et al. (2010), Mydex CIC (2010); later use: Becker (2024) |
| Privacy Preserving Reputation Management | 2003 | Privacy and rights | Kinateder & Pearson (2003), Ma et al. (2019) |
| Stuff I've seen | 2003 | Personal informatics and lifelogging | Dumais et al. (2003) |
| Personal Cloud | 2004 | Personal data stores | Anciaux et al. (2019) |
| OntoPIM | 2005 | Personal informatics and lifelogging | Katifori et al. (2005) |
| Personal Knowledge Bank | 2005 | Personal data stores | Mitchell & Henderson (2005) |
| Semex System | 2005 | Personal informatics and lifelogging | Dong & Halevy (2005) |
| The Laws of Identity | 2005 | Identity | Cameron (2005) |
| Data Commons | 2006 | Data intermediaries and governance | Hess & Ostrom (2006), Rosnay & Stalder (2020) |
| iMeMex | 2006 | Personal informatics and lifelogging | Dittrich (2006) |
| Lifebits | 2006 | Personal informatics and lifelogging | Gemmell et al. (2006) |
| Personal Database | 2006 | Personal informatics and lifelogging | Gemmell et al. (2006) |
| Vendor Relationship Management Tool | 2006 | Data intermediaries and governance | Vizard & Searls (2006), Mitchell et al. (2008) |
| Web 3.0 | 2006 | Standards and protocols | Markoff (2006) |
| Healthvault | 2007 | Personal data stores | Kelly (2007b) |
| Information Cards | 2007 | Identity | Cameron (2007) |
| Linked Data | 2007 | Standards and protocols | Berners-Lee (2009) |
| Open Data | 2007 | Standards and protocols | Auer et al. (2007) |
| Quantified Self | 2007 | Personal informatics and lifelogging | Kelly (2007a), Wolf (2010) |
| Distributed personal web-service | 2008 | Personal data stores | Geambasu et al. (2008) |
| Polis | 2008 | Personal data stores | Efraimidis et al. (2008) |
| Privacy by Design | 2008 | Privacy and rights | Cavoukian (2008, 2009) |
| Lifelogging | 2009 | Personal informatics and lifelogging | O’Hara et al, (2009), Gurrin et. al., (2014) |
| Personal Data Stream | 2009 | Personal informatics and lifelogging | Shilton et al., (2009) |
| The new oil | 2009 | Data value and markets | Kuneva (2009), The Economist (2017b) |
| Virtual Individual Server | 2009 | Personal data stores | Cáceres et al. (2009) |
| Customer Managed Profiling System | 2010 | Data intermediaries and governance | Reppel & Szmigin (2010) |
| Personal Cloud Butler | 2010 | Personal data stores | Seong et al. (2010) |
| Personal Container | 2010 | Personal data stores | Mortier et al. (2010) |
| Personal Data Ecosystem | 2010 | Data intermediaries and governance | Landsman et al. (2010) |
| Personal Data Server | 2010 | Personal data stores | Reed (2010b) |
| Personal Data Service | 2010 | Personal data stores | Reed (2010a, 2010b), Trevithick (2010a) |
| Personal Data Vault | 2010 | Personal data stores | Hoefmans et al. (2022), Mun et al. (2010), Mun et al. (2014) |
| Privacy-Preserving Technologies | 2010 | Privacy and rights | Moiso et al. (2012), Montjoye et al. (2014), Mun et al. (2010), Perentis et al. (2017) |
| Zero Trust | 2010 | Standards and protocols | Kindervag (2010) |
| Federated Social Web | 2011 | Standards and protocols | Project Nori (2011) |
| midata | 2011 | Data intermediaries and governance | Department for Business, Innovation and Skills & Davey (2011) |
| Personal Applications | 2011 | Personal data stores | Project Danube (2011) |
| Personal Data Analytics | 2011 | Personal informatics and lifelogging | Personal Data Ecosystem Consortium (n.d.) |
| Personal Data Bank | 2011 | Personal data stores | Personal Data Ecosystem Consortium (n.d.) |
| Personal Data Locker | 2011 | Personal data stores | Personal Data Ecosystem Consortium (n.d.) |
| Personal Data: A New Asset Class | 2011 | Data value and markets | World Economic Forum (2011) |
| Personal informatics | 2011 | Personal informatics and lifelogging | Li et al. (2021) |
| Intention Economy | 2012 | Data value and markets | Searls (2012) |
| Life management platform | 2012 | Personal data stores | Kuppinger (2012), Burton (2013) |
| Self-Sovereign Identity | 2012 | Identity | Loffreto (2012, 2016) |
| Unbiased Private Data | 2012 | Data value and markets | Aperjis & Huberman (2012) |
| Verified Social Reputation | 2012 | Identity | Marketwired (2012) |
| A Bite of Me | 2013 | Data value and markets | Zannier (2013) |
| Digital afterlife | 2013 | Privacy and rights | Tuerk (2013) |
| Phygital | 2013 | Identity | Borgne (2018) |
| Privacy Self-Management | 2013 | Privacy and rights | Solove (2013, 2021) |
| Trusted Compute Cells | 2013 | Personal data stores | Hardjono et al. (2014) |
| Customer Information Industry | 2014 | Data value and markets | McKean (2014) |
| Digital safety box | 2014 | Personal data stores | PAOGA (2014) |
| Hub-of-all-things | 2014 | Personal data stores | Ng et al. (2014) |
| Me2B | 2014 | Data intermediaries and governance | Price & Jaffe (2014) |
| My Data Store | 2014 | Personal data stores | Moiso et al. (2012), Vescovi et al. (2014) |
| Peer-To-Peer Cloud Storage Network | 2014 | Standards and protocols | Wilkinson (2014) |
| Personal Big Data | 2014 | Personal informatics and lifelogging | Gurrin et al. (2014) |
| Personal Data Cloud | 2014 | Personal data stores | Wang & Wang (2014) |
| Personal Information Management Service | 2014 | Data intermediaries and governance | Ctrl-Shift (2014) |
| SafeAnswers | 2014 | Personal data stores | Montjoye et. al (2014) |
| Self Data | 2014 | Personal informatics and lifelogging | Foundation Internet Nouvelle Génération (2014, 2017) |
| Your AntiSocial Network | 2014 | Personal data stores | PAOGA (2014) |
| Data Collaborative | 2015 | Data intermediaries and governance | Verhulst (2015) |
| Internet of Me | 2015 | Personal informatics and lifelogging | Spicer (2015) |
| Personal Information Management System | 2015 | Personal data stores | Abiteboul et al. (2015), Buttarelli (2016a, 2016b), Attoresi & Moraes (2021) |
| Data Commons | 2016 | Data intermediaries and governance | Grossman et al. (2016) |
| Data Stewards | 2016 | Data intermediaries and governance | Peyret (2016) |
| Databox | 2016 | Personal data stores | Crabtree et al. (2016), Haddadi et al. (2015) |
| Decentralized Public Key Infrastructure | 2016 | Identity | Allen et al. (2016) |
| Do-it-yourself-data protection | 2016 | Privacy and rights | Matzner et al. (2016) |
| Information Fiduciaries | 2016 | Data intermediaries and governance | Balkin (2016, 2024) |
| Personal Data Economy | 2016 | Data value and markets | Juniper Research (2016) |
| Personal Online Database (POD) | 2016 | Personal data stores | Mansour et al. (2018) |
| Consent intermediaries | 2017 | Data intermediaries and governance | Lehtiniemi & Kortesniemi (2017) |
| Identity Metasystem | 2017 | Identity | Cameron & Jones (2017) |
| Personal health information management system (PHIMS) | 2017 | Personal data stores | Neyens & Childers (2017), Pawar et al. (2022) |
| The Internet of Us | 2017 | Privacy and rights | Lynch (2016) |
| Verified Claims | 2017 | Standards and protocols | Sporny & Longley (2017) |
| Data Trusts | 2018 | Data intermediaries and governance | Hardinges (2018), Mills (2019) |
| Information Bank | 2018 | Data intermediaries and governance | Hemmi (2019), Ministry of Internal Affairs and Communications Japan (2022) |
| Legal Entity Identifier (LEI) | 2018 | Identity | Global Legal Entity Identity Foundation (n.d. a) |
| Mediators of Individual Data | 2018 | Data value and markets | Lanier & Weyl (2018) |
| Person-controlled personal data | 2018 | Personal data stores | Ng (2018) |
| Data Cooperative | 2019 | Data intermediaries and governance | Hafen (2019) |
| Decentralized Web Node | 2019 | Standards and protocols | Buchner (2019), Buchner et al. (2024), |
| Digital Guardianship | 2019 | Identity | Sovrin Guardianship Task Force (2023), |
| Personal Data Co-Operatives | 2019 | Data intermediaries and governance | Hafen (2019) |
| Personal Vault | 2019 | Personal data stores | Microsoft (n.d.) |
| Semantic Container | 2019 | Standards and protocols | OwnYourData (2019) |
| Verified Credentials | 2019 | Identity | Sporny & Longley (2019) |
| Data ID Card | 2020 | Identity | Hartman et al. (2020) |
| Data Safe | 2020 | Personal data stores | Loohuis (2020), Mediahuis (2022) |
| Distrust and Verify | 2020 | Identity | Pompeo (2020); related: Reagan (1987), Kindervag (2010), Goldwasser et al. (1985) |
| Independent Data Stewardship | 2020 | Data intermediaries and governance | Hartman et al. (2020) |
| My Data Operator | 2020 | Data intermediaries and governance | Langford et al. (2020) |
| Personal Data Spaces | 2020 | Data intermediaries and governance | European Commission (2020) |
| Smart Data | 2020 | Data intermediaries and governance | Department for Business, Energy and Industrial Strategy (2020) |
| @Sign | 2021 | Identity | AtSign (2021) |
| Authentic Data | 2021 | Standards and protocols | Huseby (2021) |
| Authentic Data Economy | 2021 | Data value and markets | Huseby (2021) |
| Data Custodian | 2021 | Data intermediaries and governance | Centre for Data Ethics and Innovation (2021) |
| Data Exchange | 2021 | Data intermediaries and governance | Centre for Data Ethics and Innovation (2021) |
| Decentralized Identifier | 2021 | Identity | Hamilton-Duffy et al. (2021) |
| Digital Personal Data Stores | 2021 | Personal data stores | Mariani et al. (2021) |
| Digital Wallet | 2021 | Identity | Lemoie (2021) |
| Identity Agent | 2021 | AI and agents | Trevithick (2021) |
| Recognized consent management services | 2021 | Privacy and rights | Bernemann & Kneuper (2023) |
| Self-Sovereign Data Storage | 2021 | Personal data stores | Nuggets (n.d.) |
| Agents | 2022 | AI and agents | Windley (2022) |
| Data Passport | 2022 | Identity | Dataswyft (2021) |
| Digital Fiduciary | 2022 | Data intermediaries and governance | Flanagan (2022) |
| Digital Self-Determination | 2022 | Privacy and rights | Federal Department of the Environment, Transport, Energy and Communications & Federal Department of Foreign Affairs (2022), Verhulst (2023) |
| Do-it-yourself data protection | 2022 | Privacy and rights | Piasecki et al. 2022 |
| Encrypted Data Vaults | 2022 | Standards and protocols | Sporny & Trider (2022) |
| Get My Data | 2022 | Privacy and rights | Get My Data (2022) |
| Non-Profit Data Intermediaries | 2022 | Data intermediaries and governance | Flanagan (2022) |
| Personal Data Account | 2022 | Personal data stores | Dataswyft (2022) |
| Private For-Profit Data Intermediaries | 2022 | Data intermediaries and governance | Flanagan (2022) |
| Public Data Intermediaries | 2022 | Data intermediaries and governance | Flanagan (2022) |
| Verified Legal Entity Identifier (vLEI) | 2022 | Identity | Global Legal Entity Identity Foundation (n.d. b) |
| Digital Public Infrastructure | 2023 | Data intermediaries and governance | Kuzev & Hall (2023), AtSign (2024) |
| Personal Data Warehouses | 2023 | Personal informatics and lifelogging | Willison (2020) |
| Personal Digital Agent Protocol | 2023 | AI and agents | Gropper (2023) |
| Trust Framework | 2023 | Data intermediaries and governance | Department for Digital, Culture, Media & Sport & Department for Science, Innovation & Technology (2023) |
| Web 5 | 2023 | Standards and protocols | Jones (2023) |
| Empowerment Tech | 2024 | Personal data stores | Smith (2024) |
| Personal Data eXchange | 2024 | Personal data stores | Mitchell (2024) |
| Personal Data Management Platform | 2024 | Personal data stores | N. Venezia, personal communication, 3 May 2024. |
| Profile Information Management System | 2024 | Data intermediaries and governance | NHS (2024) |
| Human Context Protocol (HCP) | 2026 | AI and agents | Shah, South, et al. (n.d.); Stanford Digital Economy Lab (2026, n.d.-a) |
| Portable Memory | 2026 | AI and agents | Stanford Digital Economy Lab (2026, n.d.-b) |
Nothing matches those filters.
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